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"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher
Buchkauf
We The Scientists, Amy Dockser Marcus
- Sprache
- Erscheinungsdatum
- 2023
- product-detail.submit-box.info.binding
- (Hardcover)
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